We define public involvement in research as research conducted ‘with’ or ‘by’ members of the public, rather than to them. This can include working with research funders, offering advice as a member of a steering group and contributing to research.
When we use the term ‘public’ we are including patients, potential patients, carers and people who use health and social care services. It also includes people from organisations that represent people who use services. Whilst we are all, former or potential users of health and social care services, there is a distinction between the perspectives of the public and the perspectives of people who have a professional role in health and social care services.
The Unit also works with VOICE, Newcastle University’s leading engagement platform. This ensures that patients and the public are at the centre of our research.
Our PPIE Strategy Group
Within the Unit we have a dedicated team of six external patient and public representatives, who form our PPIE strategy group. This group provides advice on the involvement of patients and the public at each stage of our research, including reviewing project protocols and evidence reviews. The Lead and Deputy Lead attend our management meetings and all members are invited to take part in staff training and collaboration events. The Strategy Group meets on a monthly basis and between meetings they communicate regularly via email and the VOICE platform. As well as contributing to all our project work, the group also helps to advise and guide us on our emerging PPIE strategy. The Strategy Group also has representation on our Scientific Advisory Board.
Click here to meet our Strategy Group members.
In addition to our dedicated PPIE Strategy Group we also involve members of the public in our research projects using our PPIE condition specific networks, by posting opportunities on the VOICE platform and by advertising via social media.
Payment for PPIE activity
We reimburse all PPIE activity in line with NIHR guidance and in accordance with our institutional Travel and Expenses policies.
The PPIE payment policy can be found here